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Genetic Ownership Rights

Americans overwhelmingly support genetic privacy and control over their genetic information. A 2000 Gallup survey found that most adults (86%) believe a physician should ask permission first before running tests for genetic factors. . . (continue reading)

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Jun. 2008 Minn. Governor Protects Genetic-Privacy Rights; Vetoes “DNA Warehouse” Bill
May 2008 Federal Anti-Discrimination Bill Inadvertently Legalizes Sharing of Genetic Information Without Patient Consent
Apr. 2008 CCHC Urges President Bush to Veto Newborn Genetic Screening Bill (S. 1858); Says Bill Lacks Privacy, Property Rights and Informed Consent Safeguards
Apr. 2005 Should a Federal Committee Recommend Making Your Family’s Genetic History Available on the Internet?
Feb. 2005 Who’s Shaping Our Genetic Health Policies?
8/12/2002 Individuals Lose But Government and Corporations Gain Control over Personal Health & Genetic Information - Bush administration grants data-processing companies and other health care industries new federal regulatory authority to collect and share individuals' personal health information—including genetic information—without individuals' consent.
6/4/2001 Testimony Before the Pennsylvania Senate Communications and High Technology Committee - Simply because we have new technology that facilitates the exchange of medical information electronically does not mean that we should eliminate the important legal concept of informed consent.
4/3/2001 Who Owns Your Genetic Information? - Americans concerned about genetic privacy and ownership rights should carefully read consent forms when undergoing medical procedures and treatments.
1/4/2001 IHF Hosts Roundtable Discussion of Patients' Rights (Including Genetic Privacy) - The first principle of the Nuremberg Code is "The voluntary consent of the human subject is absolutely essential."
9/26/2000 Gallup Survey Finds Americans' Concern About Medical Privacy (Including Genetic Privacy) Runs Deep - Key findings include: 91 percent oppose a federal requirement to assign everyone a medical identification number.
Sept. 2000 Public Attitudes Toward Medical Privacy (Including Genetic Privacy) - This report is based on the results of a survey conducted by The Gallup Organization on behalf of the Institute for Health Freedom.